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Each month we will feature the Carcinoid story of one of our members on this page. The story of other members will also be available by clicking one of the links below. Members - Send me your Bios now! Mary's bio Diagnosed 1991 Harry Lyle's bio Diagnosed July 1998 Al Simms's bio Diagnosed March 2000 Dina Bolshazy's bio Diagnosed June 2000 Charles Worthington's bio Diagnosed Sept. 2001 Memorial bios Members we have lost. You will note that the bios are listed in order of the year of diagnosis. As you read the bios you will see that for some of us the disease started many years prior to diagnosis. In Dina and Larry's cases they had symptoms in the 1970's!! The disease must have started long before that. Hopefully the remainder of it's course will be at least as long. |
Markers: No base line markers were established prior to the surgery. Post surgery markers include
Current: Symptomatic with little to no syndrome at present. Minimal flushing exists under normal conditions, extreme flushing occurs under stressful situations. No diarrhea. Normal BP is 117/70, pulse at 76, weight at 235 lb (106.6 kg) and a height of 6 ft 4 in (193 cm). Treatment: At present, no treatment is being administered.
History: A 54 year old male with a history of stomach problems his whole life. In 1985, worsening abdominal pains developed with irregular bowel movements, mild shortness of breath, sweating (especially nocturnal), and flushing. An extensive workup at that time prove unrevealing. CAT scan was performed in 1995, which was negative for any tumor in the abdomen. On September 23, 2001, was admitted to the emergency room after suffering all day with severe abdominal pains, nausea, and constipation. Over the next several days, patient underwent an upper GI series which was negative, colonoscopy which was negative, and a CT scan which demonstrated a large omental mass situated around the mid-abdomen, likely mesenteric. A laparotomy was performed on October 2, 2001. Upon entering the abdominal cavity there was a mass that measured 1.5 cm felt in the small bowel approximately 2-1/2 feet from the terminal ileum and a second mass that measured .5 cm found approximately 12 inches from the first mass, both of which were resected along with 18 inches of the small bowel. A bulky mass approximately 2.7 cm was palpable deep in the root of the small bowel mesentery, and was not resectable given its proximity and encasement of the SMA. Review of the pathology showed the 1.5 cm mass to be a carcinoid tumor involving the muscularis propria submucosa and a lamina propria of the small bowel. The .5 cm mass was also a carcinoid tumor and involved the lamina propria of the submucosa. The patient recovered from surgery and is doing well. There are no headaches, no dizziness, no visual disturbances, no hearing disturbances, no oral lesions. The neck is supple with no difficulties breathing, no chest pain, no subsequent abdominal pain, no diarrhea, limited constipation, no dysuria, and no skin rash. The patient experiences constant itching of the back and extreme back and neck tension. Prior to surgery, the patient presented with systems of flushing and frequent night sweats that would soak the bed. Patient also experienced two to three days without a bowel movement followed by stool that started as constipated and finished as diarrhea. These have resolved since surgery. Past Medical:
Social History: Born and raised in North Carolina, and has resided in Virginia since 1971. Has a B.S. degree in Mechanical Engineering, and was a Registered Professional Engineer practicing mechanical, electrical, and plumbing engineering. Last position was with Northrop Grumman Ship Systems. Has not had prolonged chemical exposures.
Has been married for 30 years and they have one son who also lives in Virginia. No tobacco, no alcohol, no illicit habits, no pets, and limited travel. Family History: Significant for fatal intestinal cancer with prior melanoma in his paternal grandfather and father, and fatal breast cancer in his paternal grandmother with metastasizes to other parts of the body. No other history of carcinoma or cancer. Medications: None For more detail on my Carcinoid journey please feel free to contact me by Email at clwj@shentel.net |