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Anonymous, Fetal Surgery. Discover v20n3 (1999): 28 Accessed 24 Jan. 2004 http://www.infotrac.com

Barker, Ellen and Michael Saulino, Spina Bifida. RN v65 i12 (2002): 33 Accessed 24 Jan. 2004 http://www.infotrac.com

Blum, Robert William, and Michael D Resnick, Family and Peer Issues Among Adolescents with Spina Bifida and Cerebral Palsy. Pediatrics v88 n2 (1991): 280 Accessed 24 Jan. 2004 http://www.infotrac.com

Brown, Jean Park, Orthopeadic Care of Children with Spina Bifida: You’ve Come a Long Way Baby! Orthopaedic Nursing v20 i4 (2001): 51 Accessed 24 Jan. 2004 http://www.infotrac.com

Desposito, Franklin, et al. Folic Acid for the Prevention of Neural Tube Defects. Pediatrics 104 no.2 (1999): 322-327.  Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Dr. Duane Murphy, email communication, February 1, 2004

Facts About Spina Bifida Spina Bifida Association of America Accessed 24 Jan. 2004 http://www.sbaa.org

Folic Acid Information Spina Bifida Association of America Accessed 24 Jan. 2004 http://www.sbaa.org

Frankland, A.W., Latex Allergy. Journal of Nutritional and Environmental Medicine 9 no. 4 (1999): 313-321 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Green, Nancy S., Folic Acid Supplimentation and Prevention of Birth Defects. Journal of Nutrition 132 no. 8s (2002): s2356-s2360.  Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Herz, David, M.D., F.A.C.S., Myelomeningocele: Spina Bifida. Accessed 24 Jan. 2004 http://www.drherz.com/C_OurPractice/C36_SpinaBifida.html

Hunt, Gillian M, and Pippa Oakeshott, Outcome in People with Open Spina Bifida at age 35: Prospective Community Based Cohort Study. British Medical Journal 326 no. 7403 (2003): 1365 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Iskandar, B J, and C McLaughlin, Split Cord Malformations in Myelomeningocele Patients. British Journal of Neurosurgery 14 no. 3 (2000): 200-203 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Johnson, Chris P, M.Ed., and Jane Dorval, M.D., Transitions into Adolescence. Spina Bifida Association of America Accessed 24 Jan. 2004 http://www.sbaa.org

Lavin, Judith Loseff, Special Kids Need Special Parents: A resource guide for parents with children with special needs. New York: Berkley Books, 2001.

Liptak, Gregory S, Managed Care and Children with Spina Bifida: What Families Should Know. Insites into Spina Bifida (1998) Spina Bifida Association of America Accessed 24 Jan. 2004 http://www.sbaa.org

Lutenhoff, Marlene, R.N., M.S.N., and Sonya Oppenheimer, M.D. Spinabilities: A Young Person’s Guide to Spina Bifida. Maryland: Woodbine House, 1997.

Lutkenhoff, Marlene, R.N., M.S.N. Children with Spina Bifida: A Parents’ Guide. Maryland: Woodbine House, 1999.

Parker, James N, M.D., ed, and Phillip M Parker, Ph.D., ed. The Official Parent’s Sourcebook on Hydrocephalus: A Revised and Updated Directory for the Internet Age. California: ICON Health Publications, 2002.

Pat Mac Donald, personal communication, February 5, 2004

Price, Anne Marie (Oct 1997) A new way of life. Exceptional Parent v27n10 (1997): 36 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Purdy, Candy, Birth Defects – Life Does go on. Current Health 2 vol. 20 no. 2 (1993): 12-13 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Sandler, Adam, M.D. Living with Spina Bifida: A Guide for Families and Professionals. North Carolina: The University of North Carolina Press, 1997

Shure, Julia, Raising a Child with Spina Bifida. Parents v66 n 9 (1993): 21-26 Accessed 24 Jan. 2004 http://newfirstsearch.oclc.org

Spotlight on Spina Bifida. Spina Bifida Association of America Accessed 24 Jan. 2004 http://www.sbaa.org

The effects of Postsecondary settings on Employment Outcomes and Technological Supports Transfer. University of Hawaii, Center for Disability Studies, Accessed 24 Jan. 2004 http://www.infotrac.com

Tomlinson, Pat, and I.D. Sugarman, Complications with Shunts in Adults with Spina Bifida. British Medical Journal v311 n7000 (1995): 286 Accessed 24 Jan. 2004 http://www.infotrac.com

Toporek, Chuck, and Kellie Robinson, Hydrocephalus: A Guide for Patients, Families and Friends. California: O’Reiley and Associates, 1999.

Copyright 2004 Danny L. Ayres

Disclaimer:

This page is a compilation of information and resources intended to be a service to parents of children
who have spina bifida. Inclusion of any resource or web site does not imply endorsement.

Any medical or health care reference is intended for informational purposes only. If you have
any questions relating to your child's condition please consult your child's doctor.