A.L.E.R.T., Inc. (Allery to Latex Education & Resource Team) PO Box 13930; Milwaukee, WI 53213-0930; (888) 972-5378; (414) 677-2808 - fax; E-mail: alert@execpc.com Web: http://www.execpc.com/~alert/Pages/main.html

E.L.A.S.T.I.C. (Education for Latex Allergy / Support-Team and Information Coalition) Debra Adkins, Editor; 176 Roosevelt Ave; Torrington CT 06790; 203-482-6869; FAX: (203) 482-7640; 76500.1452@compuservecom

Guardians of Hydrocephalus Research Foundation 2618 Avenue Z; Brooklyn NY 11235; Telephone: 1-800-458-8655; 718-743-4473; Fax: 718-743-1171

Hydrocephalus Association 870 Market St, Ste 955; San Francisco, CA 94102; (415) 732-7040 (415) 732-7044 Fax; E-mail: hydroassoc@aol.com; Web: http://neurosurgery.mgh.harvard.edu/ha/

Hydrocephalus Research Foundation, Inc. 1670 Green Oak Circle; Lawrenceville GA 30243; (770) 995-9570; (770) 995-8982 fax; E-mail: ann_liakos@atlmug.org

Hydrocephalus Support Group PO Box 4236; Chesterfield MO 63006-4236; (314) 532-8228; (314) 995-4108 fax; E-mail: hydro@inlink.com

Learning Disabilities Association of America 4156 Library Rd; Pittsburg PA 15234; 412-341-1515; Fax: 412-344-0224; E-mail us at ldanatl@usaor.net; Web: http://www.ldanatl.org/

Learning Disabilities Association of Canada 323 Chapel St, St 200; Ottawa ON CAN K1N 7Z2; 613-238-5721; Fax: 613-235-5391; E-mail: ldactaac@fox.nstn.ca

National Center on Learning Disabilities 381 Park Ave S Ste 1420; New York NY 10016; 212-545-7510; Fax: 212-545-9665

National Father's Network; 16120 N.E. 8th Street; Bellevue, WA 98008-3937; Phone: (206) 747-4004, ext. 218; Fax: (206) 747-1069; E-mail: jmay@fathersnetwork.org; Web: http://www.fathersnetwork.org/

National Hydrocephalus Foundation 22427 South River Road; Joliet IL 60436; (815) 467-6548 E-mail: hydrobrat@aol.com

Spina Bifida Association of America 4590 MacArthur Blvd NW #250; Washington DC, 20007-4226; Telephone: 800-621-3141; 202-944-3285; Fax: 202-944-3295 E-mail: spinabifda@aol.com

Spina Bifida Association of Canada 220-388 Donald Street; Winnipeg MB CAN R3B 2J4; Telephone: 1-800-565-9488; 204-957-1784; Fax: 204-957-1794

The Hydrocephalus Foundation, Inc. (HyFI) 910 Rear Broadway; Saugus, Massachusetts 01906; (781) 942-1161; Web: http://neurosurgery.mgh.harvard.edu/hyfi/

The Sibling Support Project; Children's Hospital and Medical Center; PO Box 5371; CL-09; Seattle, WA 98105; Phone: 206-368-4911; Fax: 206-368-4816; E-mail: dmeyer@chmc.org; Web: http://www.chmc.org/departmt/sibsupp/

World Arnold Chiari Malformation (ACM) Association 31 Newtown Woods Road; Newtown Square, PA 19073; 610-353-4737; E-mail: mjanness@ix.netcom.com; Web: http://www.pressenter.com/~wacma/

Recommended Reading

A Guide to Hydrocephalus by the Spina Bifida & Hydrocephalus Association of Ontario, Canada.*

A Parent's Guide to Spina Bifida (University of Minnesota Guides to Birth and Childhood Disorders) by Beth-Ann Bloom, Edward L. Seljeskog; Published by Univ of Minnesota Pr; Publication date: June 1988; ISBN: 0816614865

An Introduction to Spina Bifida by David McLone M.D.*

Answering Your Questions about Spina Bifida Provides information to help you understand the basic medical, educational and social issues which commonly affect people with Spina Bifida. Also contains illustrations and tables. By Dr. Catherine Shaer *

Bowel Continence and Spina Bifida An excellent book aimed at anyone (infant or adult) trying to attain bowel continence. Focuses on continence programs, bowel management development and techniques. Provides sample menus, bowel tracking charts and glossary of terms.*

Giant Steps: The Story of One Boy's Struggle to Walk by Gilbert M. Gaul; Published by St Martins Pr; Publication date: January 1993; ISBN: 0312087292

Healthcare Guidelines 1995: Guidelines for Spina Bifida Health Care Services throughout life. Editor Karen Rauen MSN, RN.*

Introduccion a Espina Bifida (Spanish Version of the above) By David McLone M.D.*

Learning Disabilities and the Person with Spina Bifida by Phyllis J. Agness Ed.D.*

Living With Spina Bifida: A Guide for Families and Professionals; by Adrian Sandler Published by Univ of North Carolina Press; Publication date: September 1, 1997; ISBN: 0807846570

Spinabilities: A Young Person's Guide to Spina Bifida by Marlene Lutkenhoff (Editor), Published by Woodbine House; Publication date: February 1, 1997; ISBN: 0933149867

Teaching the Student With Spina Bifida by Fern L. Rowley-Kelly , Donald H. Reigel (Editor); Published by Paul H Brookes Pub Co; Publication date: August 1992; ISBN: 1557660646

*Materials marked with an asterisk are available from SBAA; 4590 MacArthur Blvd NW #250; Washington DC, 20007-4226; Telephone: 800-621-3141; 202-944-3285; Fax: 202-944-3295 E-mail: spinabifda@aol.com

On-Line Information and Support Resources

There are a few on-line discussion groups for parents of children who have Spina bifida. SB-Parents is an Internet Mailing List. It is a discussion list of parents of children who have Spina bifida and others interested in the care of children who have Spina bifida. To subscribe send an e-mail message to: sb-parents@onelist.com

There is a Usenet Newsgroup: alt.support.spina-bifida

Web Sites:

Children with Spina Bifida: A Resource Page for Parents

http://www.waisman.wisc.edu/~rowley/sb-kids/

Spina Bifida Association of America (SBAA) Web Site

http://www.sbaa.org/

Steve's Hydrocephalus Page

http://web.syr.edu/~sndrake/hyd1.htm

Latex Allergy Internet Resources

http://pw2.netcom.com/~nam1/latex_allergy.html