Username:

Bev Jones

UserEmail:

angel.girl@gamewood.net

city:

Danville

location:

USA

web_url:

web_title:

Date:

13 Sep 2004

Time:

20:01:41

Remote User:

Comments

Being I have spina bifida myself I found this site to be very informative. I learned a lot of things that I did not know before I read it. Thanks for the great friendship you have given to me over the last few months. I am proud to have you as a friend. You might be a brat, but your a great brat :)

Username:

Kim Prator

UserEmail:

Kaykayp29@aol.com

city:

Atlanta

location:

United States

web_url:

web_title:

Date:

13 Sep 2004

Time:

22:29:40

Remote User:

Comments

This is a very cool page with a lot of valuable information. I'm very impressed goober :P

Username:

Paul Nickulas

UserEmail:

elusive_pimpernel@hotmail.com

city:

Amherst, NH

location:

03031

web_url:

web_title:

Date:

14 Sep 2004

Time:

09:11:39

Remote User:

Comments

Danny - This is a really great site about SB in general, and about you in particular. You tell your story with both wit and grace, and it just goes to indicate that you have a bright future ahead of you. Your friend, Pim

Username:

satinkriz

UserEmail:

lws1@email.ky

city:

hull

location:

uk

web_url:

web_title:

Date:

14 Sep 2004

Time:

12:39:50

Remote User:

Comments

Danny what a fantastic way in how you have dealt with your life. you have my full admiration. you are right when you say that people should see you for who you are. you have my best wishes with you now and for the future.

Username:

Michelle Lucas (Misha)

UserEmail:

bluegirlsworld@hotmail.com

city:

Auckland

location:

New Zealand

web_url:

web_title:

Date:

29 Sep 2004

Time:

19:39:48

Remote User:

Comments

WOW!!!! Danny your website is awesome, its very informative well done mate

Username:

Melissa

UserEmail:

M_Smith08092004@hotmail.com

city:

Durant

location:

USA

web_url:

web_title:

Date:

10 Nov 2004

Time:

20:19:49

Remote User:

Comments

Danny, This is a great site. Not only did it tell me alot of stuff I did not know about my own disability. But it also showed my husband alot about it that I never knew how to explain. It helped us both in many ways. This is a great site and you are a great friend.

Username:

Kailey Thompson

UserEmail:

ktdramaqueen@bellsouth.net

city:

Melbourne

location:

USA

web_url:

web_title:

Date:

18 Jan 2005

Time:

18:03:57

Remote User:

Comments

I just wanted to say thanks. Because I was looking up information for a skit on genetics and stumbled across your amazingly informative website. I was totally going to b/s this and not even look anything up on spina bifida, but i'm really glad I did because you tought me alot. I couldn't imagine going through all that, but you seem so strong and nice and intellegent. Good Luck!

Username:

Debra A. Naddeo

UserEmail:

dnaddeo@yahoo.com

city:

Drexel Hill, PA

location:

USA

web_url:

web_title:

Date:

22 Feb 2005

Time:

12:40:23

Remote User:

Comments

What a great story. I am a lot like you in the way I was brought up and how fiercely independent I am. I do not have a shunt, though. I do have myelomeningocele and I wear a brace on my right leg, I have no feeling in my right leg at all but I function well despite that and I drive without any modifications. I am happily married with 4 children of my own none of whom have spina bifida. I am currently in school for medicine. I am planning on being a neonatal physician to help infants who are born with sb. Good luck in the future.

Username:

Mrs. Roberts

UserEmail:

blueroot@sbcglobal.net

city:

Atoka

location:

USA

web_url:

N/A

web_title:

N/A

Date:

15 Mar 2005

Time:

20:44:46

Remote User:

Comments

My cousin's baby was born with spina bifida yesterday. He has heart abnormalities, a malformed leg, one kidney, trouble breathing on his own and no rectum. He has underwent a temporary fix of surgery to his little heart yesterday and is as I type undergoing surgery for a colostemy bag. His brain is deemed to be normal at this time. I don't understand why his rectum and leg did not complete formation. The plumbing in his heart is backwards. Is this common? His spinal cord is actually said to be the least of his worries as of now because it is covered and he has so many other health risks. Can someone please explain these things to me? What is the rate of survival for newborns that must endure so many surgeries this soon? He will have another heart surgery next week to make more serious corrections in his heart. I'm just overwhelmed that so many things are wrong and saddened that his start in this life must be so painful and harsh. I hope to hear from someone soon, Concerned

Username:

Brittany

UserEmail:

lilthuggishmami@yahoo.com

city:

Middlebury

location:

United States

web_url:

web_title:

Date:

17 Mar 2005

Time:

14:57:32

Remote User:

Comments

i think you're website is awesome.. My niece has spina bifida and this is helping me know alot about it.. thanks a bunch

Username:

Granny

UserEmail:

Talenausa@hotmail.com

city:

Memphis

location:

USA

web_url:

n/a

web_title:

n/a

Date:

21 Mar 2005

Time:

23:45:09

Remote User:

Comments

Hi Kiddo!!! hugsssssssssssssssssssssssssssss

Username:

shane jones

UserEmail:

bittysister@hotmail.com

city:

wink

location:

winkler

web_url:

http://sjpictures.piczo.com

web_title:

shanes pictures

Date:

21 Mar 2005

Time:

23:47:46

Remote User:

Comments

This put the f u in fun :)

Username:

Tru Lawter

UserEmail:

trulawter@yahoo.com

city:

spartanburg

location:

united states

web_url:

web_title:

Date:

22 Mar 2005

Time:

00:15:04

Remote User:

Comments

you did a spectacular presentation young man. Im proud to call u my friend. Quite a bit of the information I had already because I am a nurse. I've had patients with sb of varying ages,and have been instrumental in helping to mainstream quite a few. You are the first really intelligent person with sb I've met. It is a privilege to know you.

Username:

emily

UserEmail:

city:

orlando

location:

usa

web_url:

web_title:

Date:

28 Mar 2005

Time:

10:26:00

Remote User:

Comments

i have spina bifida

Username:

Walid Qusaibati

UserEmail:

wqusaibati@saudibuilding.org

city:

Jeddah

location:

Kingdom Saudi Arabia

web_url:

N/A

web_title:

N/A

Date:

17 Apr 2005

Time:

02:03:49

Remote User:

Comments

I'm Syrial working and living in Saudi Arabia, I am writing to you, hoping to receive positive response to my prayers concerning my baby daughter Shahad Qusaibati Shahrour aged: 1 Year –8 months old. Baby Shahad my only child is suffering from Spina Bifida Myelomeningocele. Fully details shall be sent to you once completed. Best Regards, Walid Qusaibati Shahrour

Username:

Mike

UserEmail:

mikestuff@hotmail.com

city:

Los Angeles

location:

web_url:

web_title:

Date:

17 Apr 2005

Time:

13:47:02

Remote User:

Comments

Nice site LOTS of info. Thanx for making it