A note from Jill: Allison is a member of the cyberspace support group for stroke caregivers. She wrote the following report on a trip she and her strokee husband took. I thought it was filled with great tips and experiences that were worth sharing. With her permission, I've posted it, below. Enjoy!
~ ~ ALLISON'S TRIP~ ~
by Allison McCaughey
As promised, I've documented the events that occurred when my husband and I embarked on our first vacation to Florida together. We have a condo down there, but I decided we would stay in a hotel, because I needed a vacation too, and I didn't want to cook, clean, and have to make sure everything was hunkydory before we left.
PREPARATIONS, PACKING, HEADING TO AIRPORT
Two weeks before we were to depart, we were packed. Jill's
travelling tips saved our lives!! I called the hotel, airlines, and
rental car agency and asked a zillion questions before we left to be
sure we were all set, explaining that I was travelling with a "special
needs" person. I THOUGHT we were all set...Here's our tale...
I asked our friend that was giving us a ride to the airport to arrive
at 9:30 am. I was up at 6:00 am. I showered and dressed, and then
proceeded to wake David to begin our long routine of eating,
showering, and dressing. The doorbell rang at 9:00 am, 1/2 hour
early! Oh Well, we were thankful for the ride. But I'm sure you can
imagine I was then frantic. David wasn't fully dressed yet, and I
still had to close up all the luggage. Our friend decided to help us.
She closed up the luggage and threw them all in the car. Thank you
very much, but I still had some lat minute things to go in the bags.
It was acually comical.
AT THE AIRPORT
We arrived at the airport at good hour and 45 minutes early. I
scrambled to get the wheelchair, and our friend got the luggage out.
We checked the luggage at the skycap, said goodbye to our friend, and
proceeded into the airport. All we had to handle was the wheelchair,
cane, foot rests, cushion, and a backpack. Yeah that's all!
We proceeded through security, where David was taken to the side and
frisked. I went through the normal procedures with backpack, my
purse, and the cane.
We then checked in at the gate. We were given a special tag for
David's chair. We still had about a 45 minute wait, so I thought I
would read. Well, guess what I forgot....my book. It was going to be
too long a flight without something to read, so I ran to the bookstore
and paid $13.95 FOR A BOOK. Forget #1.
BOARDING THE PLANE
Now it was time to board. We were boarded first. David was wheeled
down the ramp to the plane. When he got up, I put the backpack over my
shoulders, and ... I nearly fell over backwards because it was so
heavy. I felt like I was in a comedy show. I then attempted to kneel
down, with this 200 lb. pack on my back, and remove his foot rests and
cushion, which feels like it weights another 30 lbs. I went backwards
in front of David down the aisle. Of course, the backpack was getting
caught on all the seats as I backed up. Our seats in the first row
after first class. Great, there was more leg room and more room for my
husband to slide in. The rest of that flight was uneventful. Now it
was time to disembark. We waited until everyone was off the plane.
Then I dreadedly put the backpack over my shoulders again, almost
falling into the seat behind me. I then grabbed the foot rests and
cushion. David's cane was in the closet and the flight attendant
delivered it. (quad canes don't fit in some of the overheads). The
wheelchair was waiting for us. The flight attendant told us we needed
to get to gate B13 for our connection. We were in C13. O.K. We
decided to take the moving walkway. That was o.k. for David in the
chair, but I almost ended up with my head in his lap and my feet
sticking straight up a couple of times on the on and offs. Then came
this monstrous ramp to get down to the next level. I grabbed on tight,
and held my breath. I thought I was going to lose him for sure. My
arms and legs were like mush by the time we got to the bottom. When we
got to the gate, there was an announcement that said all passengers on
flight #____ to West Palm Beach should proceed to Gate C13. There has
been a Gate Change. That's where we just came from!! Now we had to go
up this monstrous ramp. Again, I grabbed on tight, and just ran. If I
had paused for a minute, we would have both been going backwards. I
told David he was no longer allowed to gain anymore weight!!
CHANGING PLANES
We had to use the moving sidewalks again, but I had those mastered. We
returned to Gate C13 to find we'd been moved again, to C31. By the
time we got to C31, I was perspiring and exhausted and I knew this was
just the beginning. Ugh!
We boarded the plane the same as previously, with no problems, except
for that one big step my husband had to take from the ramp to the
plane. That was a little hairy.
The second flight was again, uneventful. We arrived on time in West
Palm Beach to blackened skies that were ready to open any minute. Now
the fun begins. Where do we go first, the car rental agency or the
luggage. We chose the luggage. It was already waiting for us since
we were the last ones off the plane. I grabbed the luggage and found
a porter to put them on a luggage rack for us and wait while we rented
the car.
RENTAL CARS AND SHUTTLE BUSES
We were told the car would be right there in the airport, and that we
wouldn't have to take a shuttle. Wrong! We had to take a shuttle. We
went out to the middle island with the porter and waited. When the
shuttle arrived, it was NOT handicapped accessible. I tipped the
porter too soon. I should have had him put the luggage on the
shuttle. Too late, he's gone. The driver then came out and picked up
the luggage. I helped David climb up those 3 deep stairs into the
shuttle. When he was ready to sit down, I had to ask the people that
were sitting right by the door to move down so he could sit. Then
came the chair. I grabbed the backpack, cushion, and foot rests and
threw them on, then folded the chair, and pretty much threw that on
too! No help from the driver for the chair. The bus was full of
impatient travellers by the way!!
The driver dropped us off at our car first. He had to, there was no
way anyone was going to get by all our stuff. I got the chair,
cushion, rests, and backpack into the trunk. The driver put the
luggage in the backseat. Then down the stairs came David. He did
great! Then I got him in the front seat, locked him in, and we were
off.
There's always been a joke with us with this airport. My husband
always did the driving and had terrific sense of direction, but we
could never get out of this airport the first time. It always took 2
circles around. Well the joke was, if it took him 2 times, it would
take me at least 3. We were right! I couldn't find the exit!
VALET and HANDICAP PARKING
When we finally made it out of the airport, we headed for the hotel.
It still wasn't raining yet, but looking very threatening. We pulled
into the one handicapped space available. I don't do Valet. I
noticed that none of the cars had handicapped permits that were in the
handicapped spots. That's when I saw the Valet park in one of the
handicapped spots. I couldn't believe it! I didn't dare say anything
because I was tired, hot, and hungry, not to mention cranky.
I left my husband in the car while I proceeded to check in.
HANDICAP HOTEL ROOM?????
When received our room keys, I confirmed again that we had a
handicapped room. I was told, NO, and none of the handicapped rooms
were available. I then asked for the Manager. Paul (I didn't get his
full name) appeared and explained that a handicapped room would be
available the next day. I explained that a regular room would be very
unsafe for my husband. He apologized and said he would make sure our
room was available the next day. In the meantime, he would make sure
a shower chair was delivered to our "temporary" room and a rate
adjustment would be made for that evening. He instructed the desk
clerk to make a note in the "diary" that the handicapped room was not
to be rented out when it became available. After Paul left (I later
found out he was the banquet manager), the desk clerk said "I used to
work for another hotel whose policy was never to rent the handicapped
rooms unless requested. But not here. They rent them to people who
don't need them just to be full." Bingo! That was going in my
letter.
A porter helped with our bags and my husband and I proceeded to the
"temporary" room. By the way, when I got back to the car, I was told
that his limit for waiting was 20 minutes and I can't just leave him
like that. Uh, hello, I've been fighting for a safe room for you!!!
The aisle between the bed and the dresser was not even wide enough for
his chair to get through, and of course, the bathroom was as unsafe as
we expected it to be. Then the shower chair arrived. It was a BANQUET
chair with cloth on the seat. We couldn't believe it. We didn't have
the heart to use it. But it gave us a good laugh.
DINING ROOM AND LOBBY
That evening we ate in the dining area. The food was delicious and
the service was great. Paul was there. We then proceeded to the pool
area. We found we had to exit a door that was not automatic onto a
sidewalk in the parking lot. We followed the sidewalk to a small gate
that we had to open, hold it open, and pass through. We then had to
proceed past a number of tables and through another gate to get to the
pool area. It was not "easily" accessible as was described to us, but
accessible enough. Going forward we used the lobby doors because they
were automatic and the wind didn't blow it shut when we were trying to
get through with the wheelchair. Besides the fact, that the other
door gave me a flat an scraped the whole back of my foot! OUCH!
THE BEACH EXPERIENCE
The next day we thought we would go to the beach. I helped David with
his bathing suit, and I had bought some of those diving shoes he could
wear over his brace. I had to buy 2 different sizes for his good and
bad foot. Uh oh...I packed two lefts! BIG LAUGH!!! The beach was NOT
"easily" accessible. There were three stairs leading to a long deck
that had three more stairs leading down to the beach. There were also
no beach wheelchairs available. We live in New England, and we have
them here, I couldn't believe they were unavailable at the hotel-owned
beaches, but they were available at the county and state beaches. Going
to the beach was out of the question.
ALWAYS CHECK THE BILL!!!
We enjoyed our stay but when it was time to check out and I received
the bill, I noticed no rate adjustment had been made for our first
night in the "temporary" room. I inquired. I was told there was no
notation in the "diary". I was then told that I was already getting a
discounted rate of $145.00 per night. My response was "Yes, but not
because of you. We received this rate through our travel agent. I
was then told they could not go any lower than the lowest rate of
$129.50. So we received $14.50 off our "temporary" room stay. I
informed the clerk that that evening could have been much more
expensive to them if my husband had fallen in their non-handicapped
room.
FOOD TROUBLES
We had some friends surprise us while we were there, which was great!
We went to breakfast, showed them around, went to dinner and had a lot
of laughs.
Unfortunately, dinner didn't agree with my husband. I don't have to
tell you about blowouts! It's not easy in a hotel room with none of
the luxuries of home like new sheets and lots of towels! Ugh!
INPLANNED "Trip"
We visited our condo and I think David was so glad to be there, he
didn't pay attention when he was walking around and fell. He hit his
head on the door jam, and lost his memory for about an hour. I called
his doctor who said....you won't see any signs of a bleed in the brain
for at least 6 weeks...just keep an eye on him. I love doctors!
RESTAURANT PRE-CHECKS
Here's a tip...if you're just pulling into a restaurant, you, as the
caregiver, should go in real quick and check it out, and even tell the
host your coming in with someone in a wheelchair. They will get the
table ready while you're getting your spouse. We wanted breakfast, so
we stopped at an I-Hop. I ran in, and NO WAY. There was no room to
get his chair down the aisle. So we went next door to Denny's and it
was all wheelchair accessible.
RETURNING THE RENTAL CAR AT THE AIRPORT
When it was time to leave, I decided I would drop the luggage off at
the skycap first, before returning the car. That way, there would be
a lot less stuff to deal with. When we returned the car, I asked if
they had a handicap shuttle. The clerk said, no, but they would just
drive us to the airport in the car we rented. That was great, but I
guess stopping at the airport was wasted time. Oh well, it was good
thinking anyway.
THE SAGA CONTINUES: FLYING HOME ON THE EXPRESS FLIGHT
The flights home were a little harried because of delays and not much
time in between. The first flight was fine. The second was not fun!
We found out we had been booked on an express flight. Which means,
having to take a bus out onto the runway and climb stairs into a 40
passenger plane. NO WAY! The flight was already an hour delayed, so
the other passengers were pretty irate. Now they had to wait for the
attendants to put my husband into a wheelchair van, shuttle him to the
plane (10 minutes away) and then strap him into an armless chair and
physically carry him up the stairs and transfer him into the seat. We
were supposed to be in row 8 at the back of plane and I just told the
attendant we were going to sit in row 2. She told the passengers they
had been moved.
Needless to say, my husband didn't like that part of the trip, and
unfortunately, it's what happened last, so it's very vivid in our
minds. Don't forget, we had to go through the same procedure getting
off the plane in RI, and then all the doors were locked to get to an
elevator, so we were being shuffled all over the place to find an open
door.
SUCCESS!!!!
All in all, we had challenges, but we also had some great laughs. Our
trip was a success in that it gave us time away from our troubles. We
had a great time and now we're thinking about moving to Florida. It's
just too much to think about right now, but maybe...


I'd love to hear from you. Please let me know if some of these
tips have helped you, or if you have some ideas or experiences of your
own that I might share with others.

Drop me a line!