To the
Essay List * To the Main Gluten Page * To the Symptoms List
Links
Here
are some quick-start links. In my opinion,
the best links happen to be the more technical sites since they represent the
most current work in the rapidly expanding knowledge of the effects of gliadin
in the human body. However, they may be
too technical for some people. If you
want softer reading, try the links to general medical websites and Links to Celiac Disease and Gluten Intolerance Associations and Support Groups.
The reading there is easier, but less technical information is available
there since they focus mostly on intestinal symptoms of the classical Celiac
Disease definition and on Dermatitis Herpetiformis (DH), which are really just
the trunk of the elephant.
Contents:
Technical Papers And Essays On The Widening Spectrum Of
Gluten Intolerance & Celiac
Links to Celiac
Disease articles on general medical sites
Links to articles on the history and role of wheat in the
human diet
Links to Celiac Disease articles on general medical sites
Links to Celiac Disease and Gluten Intolerance
Associations and Support Groups
Technical Papers And Essays On The Widening Spectrum Of Gluten
Intolerance & Celiac Disease
(particularly newer concepts on
neurological aspects:)
An argument for more sensitive and aggressive
diagnostic testing:
2003: “Early Diagnosis Of
Gluten Sensitivity: Before the Villi are Gone”, Kenneth Fine, M.D.
Comments: Dr. Fine gives new information of the
greater sensitivity of the fecal test for “gluten sensitivity”. His site also has some good “FAQs” (click on
subjects in the left frame) and some Live Public Chats.
Journal of Neurology Neurosurgery and Psychiatry
2002: “Gluten
Sensitivity as a Neurological Illness”, M Hadjivassiliou, M.D., R A
Grünewald,, M.D., and G A B Davies-Jones, , M.D.
There is VERY IMPORTANT “FAQ” halfway down under the
heading of “Contentious Issues”.
Comments: This is readable article with a focus on
neurological problems of gluten intolerance.
American Gastroenterological Association
2001: http://celiaccenter.org/Articles/celiacgastro.pdfAlessio
Fasano, M.D. And Carlo Catassi, M.D.
Comments: While this is a more technical article, it
is a good introduction to Atypical and “silent” forms of Celiac Disease and the
Iceberg Model. There is some discussion
on prevalence studies.
American
Academy of Family Physicians
1998: “Detecting Celiac Disease
in Your Patients”, Harold T. Pruessner, M.D.
Comments: This article may be a bit dated, but it
still addresses raising awareness of doctors to the new perspectives on celiac
sprue, gluten intolerance, and gliadin.
2003: “Celiac
Disease: A Pediatric Perspective”, Eleni Mihailidi, MD; et al.,
Comments: The value of this article is the sincere
recommendations that any diagnosis of any pediatric conditions associated with
Celiac Disease should or must initiate an investigation of Celiac Disease, and
that any diagnosis of Celiac Disease with Celiac Disease must initiate an
investigation the pediatric conditions associated with Celiac Disease.
(Criticism: even though this is 2003 article, its research an writing was done just
before the release of the University Of
Maryland Study, so that statements under “Incidence” are out of date.)
Links to Celiac Disease articles on general medical sites
University of Chicago
Celiac Disease Program
WebMd: Celiac Disease
University
of Maryland UM Center For Celiac Research
Links to articles on the
history and role of wheat in the human diet
GREAT!: hosted on thepaleodiet.com: This is the technical paper that convinced
me to try the Paleolithic diet. And
when the diet made me feel better and my doctor couldn’t tell me why, this
paper helped me begin to understand gluten intolerance.
1999: “Cereal Grains:
Humanity’s Double-Edged Sword”, Loren Cordain, Simopoulos AP (ed): Evolutionary
Aspects of Nutrition and Health, Series: World Review of Nutrition and Dietetics,
Basel, Karger, 1999, vol 84, pp 19–73.
Much Shorter: hosted on Celiac.com:
1995: “Why So
Many Intolerant To Gluten?”, Luigi Greco, D.C.H., M.Sc.(MCH), M.D.,
Department of Pediatrics, University of Naples.
Some Celiac Research Centers
University
of Chicago Celiac Disease Program
University of
Maryland UM Center For Celiac Research
The Cleveland Clinic
Royal Hallamshire Hospital, Sheffield,
UK. Significant research is coming out
of multiple departments here, but I don’t have a link yet.
Links to Prevalence Studies
This information is now summarized in the essay Just how common
is it, anyway?
More Neurological Studies and Articles
See also Brain/Nerve Damage Page
Because my doctor told me that she had never read anything about
neurological problems related to gluten, I started my gluten research by
collecting and publishing links to research on that very subject. Now, here is just a sample of articles and
papers I’ve found. The U.S Navy Medical
Researchers have gone as far as suggesting the nervous system is the main
focus of gluten intolerance, not the gut.
Please, click on the hypertext titles:
General Neurological
Journal: Advances in Clinical Neuroscience and
Rehabilitation
2003: “Gluten
Sensitivity: Time to Move from Gut to Brain”, Marios Hajivassiou, M.D.,
Richard Grünwald, M.D.
Harvard BrainTalk Communities/Online Patient Support
Groups for Neurology
2002: “Neurological
Disease and gluten sensitivity abstracts”
Dissertation: University of Tampere
2003: “Neurological Manifestations in
Celiac Disease”
Dr. Hajivassiou’s early observations that gliadin
antibodies may be very, very common in some neurological problems
(over 50% in some types):
1996: “Does
cryptic gluten sensitivity play a part in neurological illness?”
Ataxia
Brain
(Journal) (abstract)
2001: “Sporadic
cerebellar ataxia associated with gluten sensitivity”
2003: “Dietary
Treatment Of Gluten Ataxia”
M Hadjivassiliou1, G A B Davies-Jones1,
D S Sanders2 and R A Grünewald1
1 Department of Clinical Neurology, The Royal
Hallamshire Hospital, Sheffield, UK
2 Department of Gastroenterology, The Royal
Hallamshire Hospital
Brain
2003: “Gluten
ataxia in perspective: epidemiology, genetic susceptibility and clinical
characteristics”
Neuropathy
PubMed Abstract:
2002: “Ganglioside
reactive antibodies in the neuropathy associated with celiac disease.”
Peripheral Neuropathy
US Air Force Abstracts
2002: “Prevalence
of Gluten Sensitivity in a Population of Peripheral Neuropathy Patients”
Further down: “Rapid
Neurological Deterioration in a Patient with Varicella Zoster Viral
Encephalitis with Negative Neuroimaging” (scroll down)
BrainTalk Communities/Online Patient Support Groups
for Neurology
2003: “Gluten
and Peripheral Neuropathy” (a
collection of abstracts)
Epilepsy-Seizures
Harvard BrainTalk Communities/Online Patient Support
Groups for Neurology
2003: “Gluten
And Seizures”
Queen’s Journal of Medicine
1998: “Coeliac disease
and epilepsy”
Medline Abstracts
1996: “Epilepsy and Celiac
Medline Abstracts”
ADHD
Celiac.com
“....Research has identified ADHD in 66-70% of
children with untreated celiac disease, which resolves on a gluten-free
diet...”
Alzheimer’s
See also Alzheimer’s entry on the Brain/Nerve Damage Page
A theory:
http://members.shaw.ca/oldsite/Alzheimer's.htm
Huntington's
Massachusetts General Hospital, BrainTalk
Communities/Online Patient Support Groups for Neurology
2004: “Antigliadin antibodies in Huntington's disease”
Multiple Sclerosis
A collection of links covering Multiple Sclerosis
and Diet:
http://www.paleodiet.com/ms/#celiac
(links to middle of list)
“About 5% of celiac patients get nerve damage that can vary from tingling and numbness in the feet to confusion, memory loss, dizziness and loss of balance, visual abnormalities. This sometimes* happen in the absence of GI symptoms.”
*often
Myopathy
2004: Myopathy & Neuromuscular Junction Disorders: Differential Diagnosis
Schizophrenia
(There are many more articles than this one)
WebMD
2004: “Gluten Intolerance Linked to Schizophrenia”}
Migraine
WebMD:
2003: “Migraine Linked to Celiac Disease : Gluten Intolerance Cause of Many Migraines”}
Comment: This is important information, showing the role
of gluten and food intolerance at lease some Migraine cases, particularly in
how the symptom of headache alone led to the discovery of cases of Celiac
Disease. However, where this study
falls done is the fact that the GFD was only applied to those 4 patients who
fell into the narrow definition of classic Celiac. For thoroughness, the diet should have been offered to at least
half of the migraine patients who did not meet the narrow definition.
Malabsorption Theory
(Some theories of gluten neuropathies as
malabsorption may be out-of-date.)
2002: “Nutritional
and Other Neuropathies Associated with Gastrointestinal Disorders”
EEG Anomalies
1985: “EEG
Research Findings in Children with Celiac Disease According to Dietary
Variations – Germany”
Nystagmus, Sjogrens
This is another autoimmune neurological association I need to trace
down again (just scratched surface).
Celiac Support
Groups and Sites
Links to Celiac Disease and Gluten Intolerance Associations and Support
Groups
Celiac Sprue
Association/USA, Inc. < support
group organization
Gluten Intolerance
Group of North America < Celiac
Disease/Dermatitis Herpetiformis advocacy and education
Celiac.com <
a great private website for Celiac Disease/gluten intolerance research papers
Clan
Thompson Celiac Site < “Ask the Experts”, life style, resources, food
lists,
Gluten-Free
InfoWeb < food lists, manufacture addresses, ….
Celiac Disease
Foundation < support foundation, some local support groups
GFlinks.com
< as they say, lots of links
GlutenFreedom
< author Danna Korn’s site - limited Celiac Disease/Dermatitis Herpetiformis
information
Enabling.org <
has a Celiac section
Diabetes Institutes
Foundation < has a Celiac section