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See the history of Ben's case... Our detailed notes... All our information... Learn about the Histiocytoses... Faces of Histiocytosis Project...

Symptoms?  Use this Bar:
Eyelid swelling and orbit bone lesion
Ben's Brain Lesions
Seizures and loss of sight
Scalp Lesions
Lung involvement
Kidney involvement

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High level timeline of events...
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Ben's Medications
Ben's blood counts
Ben's Growth...

Updates? Use this bar:
Current updates... 2-CdA treatment - some success? The lesions keep growing... Methotrexate / seeing Dr. Arceci... Learning Ben has JXG... When it all started...

Want to reach us?  Carolyn & Bill Stokman - stokman1@cox.net - 480.706.5430 - Fax 480.706.0507

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Family Association for Histiocytosis Group of Medical Professionals Working on Histiocytosis Think Tank on Histiocytosis