Staging of the Disease
Disclaimer: All of these primers are written by parents that have NO medical background prior to having to deal directly with the disease. The contents should not be misinterpreted as medical advice. Our opinions could be wrong. The intent is to help you come up the learning curve and hopefully bypass some of the difficulties we have encountered. Always refer to your doctor. Like almost all things in life, there are MANY correct answers.
Baseline Diagnostic Evaluations:
Complete Blood Count
Renal Function Test (For Kidney)
Bone Marrow Aspiration & Trephine with CD1a staining
HLA-typing for "risk" patients only
High Resolution Chest CT